| European Commission EAHC |
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| DG Sanco - Health & Consumer Protection |
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| University of Milan |
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| Luigi Villa Foundation |
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| IRCCS Foundation Maggiore Hospital, Mangiagalli, Regina Elena |
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| European organization for rare diseases |
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| Angelo Bianchi Bonomi Haemophilia and Thrombosis Centre of Milan |
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International Registry of Rare Bleeding Disorders |
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| Working group on menorrhagia and other gynaecological problems in women affected by bleeding disorders |
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European Union Committee of Experts on Rare Diseases |
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| Patients Associations |
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| Belgium - AHVH, Association de l'hémophilie-hemofilievereniging - The Belgian Haemophilia Society |
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| France - Association française des Hémophiles C.N.T.S. - French association of hemophilia |
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| Germany - Deutsche Hämophiliegesellschaft (German Haemophilia organization for the fight against bleeding disorders- Bayerische Bluter Beratung (Bleeding disorders information services Bavaria) |
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| Greece - Hemophilia Patients Society |
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| Ireland - National Haemophilia Council |
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| Italy - AICE, Associazione Italiana Centri Emofilia (Italian association of Haemophilia Centres |
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| - FEDEMO, Federazione delle associazioni Emofilici (Federation of the Haemophilics associations |
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| UK - The Haemophilia Society |
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| Scientific journals |
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| Blood |
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| British Journal of Haematology |
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| Journal of biological chemistry |
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| Journal of Thrombosis and Haemostasis |
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| Haematologica |
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| American Journal of Hematology |
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| Blood coagulation and Fibrinolysis |
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| Scientific societies and associations |
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| SIMI (Italian Society of Internal Medicine) |
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| SISET (Italian Society on Haemostasis and Thrombosis) |
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| EHA (European Haematology Association) |
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| ASH (American Society of Haematology) |
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| World Federation of Hemophilia |
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ISTH (International Society of Thrombosis and Haemostasis)
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