Hemophilia 2010 Congress |
| On July 10-14, 2010, the Hemophilia World Congress, World Federation of Hemophilia (WFH) was held in Buenos Aires, Argentina.
Prof. Flora Peyvandi, from the University of Milan, presented the state of the art of the European Network of Rare Bleeding Disorders (EN-RBD) project ( Abstract 1 )
Dr Danijela Mikovic, from the Haemostasis Department and Haemophilia Center, Belgrade, Serbia, presented data on clinical manifestations in women with rare bleeding disorders obtained by the analysis of information on patients entered in the EN-RBD database ( Abstract 2 )
Moreover results on the new bleeding score specifically designed for rare bleeding disorders were presented as a poster ( Abstract 3 ) |
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| 21st International Congress on Thrombosis 2010 |
| Milan, July 6-9, 2010 |
| The Thrombosis Congress, organized by the Mediterranean League Against Thromboembolic Diseases, has an established role and tradition in the field of basic and clinical research on arterial and venous thromboembolic disorders. |
| www.thrombosis2010.org |
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On June 10-13, 2010, 15th
Congress of the European Hematology association (EHA) was held in Barcelona, Spain.
Prof. Flora Peyvandi, from the University of Milan, was invited to describe the general features of RBDs based on data from published scientific literature and on the results of three years of collaboration between 11 European treatment centers in the frame of the project “Establishment of a European Network of Rare Bleeding Disorders: EN-RBD.” A review article was published on Haematologica Journal
http://www.haematologica.org |
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56th Scientific and Standardization Committee (SSC) meeting of the International Society on Thrombosis and Haemostasis (ISTH) |
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56th Annual SSC Meeting
Cairo, Egypt |
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On May 22-25, 20010, 56th Scientific and Standardization Committee (SSC) meeting was held inCairo, Egypt .
Prof. Flora Peyvandi, from the University of Milan, presented the progresses of the European Network of Rare Bleeding Disorders (EN-RBD) project and the preliminary results obtained using a bleeding score system, specifically designed for RBDs, during the
Scientific and Standardization Committee (SSC) on Factor VIII and Factor IX
Scientific and Standardization Committee (SSC) on von Willebrand factor
Moreover Prof. Flora Peyvandi presented data on miscarriages in women affected with RBDs, during the
Scientific and Standardization Committee (SSC) on Women |
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International Congress RARE DISEASES AND ORPHAN DRUGS
Istituto Superiore di Sanità Roma, Italy
22nd – 25th February 2010 |
| Professor Flora Peyvandi presented the state of the art of the EN-RBD project and the progress in the development of the Italian registry on RBDs in collaboration with the Italian association of Haemophilia Centres (AICE) |
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3nd Annual Congress of European Association for Haemophilia and Allied Disorders (http://www.eahad2010.org/)
Edinburgh International Conference Centre
Edinburgh, Scotland
3rd – 5th February 2010 |
Professor Flora Peyvandi, on behalf of the European Network on Rare Bleeding Disorders (EN-RBD), presented the state of the art of the EN-RBD project and the results showed at the recent EN-RBD workshop, held in Athens on 16 th January.
Moreover Professor Peyvandi, made a presentation on treatment of RBDs, particularly focused on FX and FV deficiencies, explaining how it is important to develop treatment products specific for these deficiencies |
Abstract EAHAD congress |
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Rare Disease Day 2010
February 28
http://www.rarediseaseday.org/ |
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| Data and Information on Women's Health in the EU |
| This report provides an overview of women's health issues across the EU and in EEA countries. It highlights gaps and special topics where research and more information are needed |
download.pdf |
| source: E.U Health and Consumers Directorate-General |
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| EN-RBD workshop 2010 |
| the Annual Workshop of the EN-RBD working group will be held in Athens, Greece on january 16th 2010 |
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