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participants  |
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Establishment of a European Network of Rare Bleeding Disorders (EN-RBD) - University of Milan
Flora Peyvandi |
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EC/PHEA expectations regarding the EN-RBD project
European Commission / Phea |
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EN-RBD project: Content and Expectations
Roberta Palla - University of Milan |
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Institut de veille sanitaire, Unité Maladies Rares/ France Coag, Département Maladies Chroniques et Traumatismes, Saint Maurice, France
Odile Kremp |
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Pediatric Hemophilia & Thrombosis Centre, Children’s Hospital, Munich Germany
Christoph Bidlingmaier |
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Haemophillia Center, Haemostasis Unit, Athens, Greece
Sophie Aronis-Vournas |
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National Centre for Hereditary Coagulation Disorders, St James’s Hospital Dublin Ireland
Ruth Gilmore |
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National Hemophilia Center, University Children Hospital Ljubljana, Slovenia
Lidija Kitanovski |
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Cerrahpasa Medical Faculty of Istanbul University, Istanbul, Turkey
Tiraje Celkan |
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The EN-RBD Database Structure and its functions
Dario Sabaddini - Alekos, Italy |
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State of the art for treatment of RBDs
Marzia Menegatti - University of Milan |
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The patients and patient organizations and their relationship with the project
Andrea Buzzi - Fondazione Paracelso Onlus, Italy |
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Conclusion and future plans
Flora Peyvandi |
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