< home page
 
what is
 
 
Rare bleeding disorders (RBDs) are very rare coagulation disorders including afibrinogenemia, FII, FV, FVII, FV+FVIII, FX, FXI and FXIII deficiency. Relatively neglected until recently by health care providers, advocacy organizations and pharmaceutical companies.
 
Haemophilia A and B are the most frequent inherited bleeding disorders. Together with von Willebrand disease, a defect of primary hemostasis associated with a secondary defect in coagulation factor VIII (FVIII), these X-linked disorders include 95% to 97% of all the inherited deficiencies of coagulation factors -1-.
RBD's for Patients
 

definition
 
clinical
 
 
 
correlation
 
treatment
 
 
newsletter
credits
f.a.q.
links